his site went live on June 08, 2009 last updated on Nov. 4, 2009
Please we need your continued support with donations to reach Robert's goal. We appreciate any amount to help Robert. Please make a donation by debit or credit card, today.
God Bless.
I have completed all the pre-testing for Dr. Schwartzmans. Next trip to Philadelphia is November 28th.
I truly do not know what to do next to raise the additional money needed for the ketamine treatments....God please help ......I am truly in need of your gifts
During an interview (above) in his living room on Wednesday afternoon, July 1, 2009, Robert Hinton(Cumberland, RI) who is suffering from Reflex Sympathetic Dystrophy(RSD)/Complex Regional Pain syndrome(CRPS) discusses how he looked RSD up on the computer after reading his doctor's letter with his diagnosis. The skin discoloration which is one of several symptoms is visible on his right shin, left forearm and the left side of his face. Butch Adams/The Pawtucket Times.
My pain is real, there are days I look fine, the pain never stops...it does tire me....I am so tired.....of RSD......
There are days when God is silent...you ask " Lord Jesus, why do you let me suffer with this pain"...it is because he suffered on the Cross for our enternal salvation in the kingdom of Heaven...Lord, it is true RSD has no cure, but I know one day, I will again be pain free, with you in Heaven....your son,
Robert
RSD Type II (Causalgia ) has been quoted as being the most excruciating pain known to mankind
My family...a happy time
Thermography photos sh0wing the RSD in my body
The Thermography is a great tool which can show the RSD as temperature changes...the green is normal...the other colors show the Disease (RSD) in my body
Pasta and Meatball Dinner
Hi Everyone:
I want to thank everyone who came out to support me on Sunday, Sept. 27 for our Spaghetti and Meatball dinner at Saint James Church. We had a small turnout, the weather was damp and rainy. We were able to raise some additional funds for my upcoming treatment. We also raffled of some great prizes to people that did come. Thank You all who helped and donated there time.
You can make a donation to help Robert through Paypal....below...using a credit or debit card...
Education about this disease is a Powerful tool...if you have recently been diagnosed with CRPS/RSD you are not alone...remember....it only takes one person to make a difference...
James 5:14-15 says, "Is any among you sick? Let him call for the elders of the church, and let them pray over him, anointing him with oil in the name of the Lord. And the prayer of faith will save the sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven." |
I Lost so much.........
I am so tired...of the pain that never stops,the burning fire, deep within my muscles,my body, my hands shake all the time from tremors, my fingers can't straighten out anymore, I can no longer paint or do artwork, something that always brought me joy. I struggle to walk most days because my feet and toes curl in. I am sick of feeling like someone is ripping my spinal cord out of my body,then plucking it like a string of a harp. The doctors can play dot-to-dot with my x-ray films now because of all the RSD lesions on my spine. I have the feeling of knives being driven deep into my lower back and the pain is taking my breathe away, I lay in bed not resting but crying because the sheet on the bed touches my skin and it sends shocks and jolts of electric type pain through my entire body. I sleep a few hours maybe, a full 6-8 hours of sleep is something I lost because of RSD 4 years ago. I missed so many family events from birthday parties to school award nights for my childen, not because I did not choose to go, I was unable to get out of bed..the life I live every day, every hour and every minute is unbearable now...I want to scream so loudly from the 24/7 pain....it kills me. My heart beats at a resting 140 beats per minute now, and pounds my chest from the inside out like a 50lb bag of cement. My lungs hurt so much to take a breathe but the RSD...makes them burn all the time, so bad I want to claw my chest open to stop the FIRE!!!! I am losing my fight to a disease I never wanted or asked God for.......this is one one day of my RSD LIFE!!! Help......me .....please.....
Robert is in need of a two week high dose Ketamine Infusion and several months of booster shots which are not covered by his insurance. The family hopes to raise $30,000 for the treatment, travel, hospital stay, and follow up infusion boosters in Philadelphia. Robert is in stage III , beginning of stage IV Full Body,Type II, RSD.
Robert's doctor visits and more testing start in November 2009
Your help and generosity is greatly appreciated! Any donation amount helps......
What is Reflex Sympathetic Dystrophy (RSD)/ also known as
Complex Regional Pain Syndrome (CRPS) ?
RSD describes a condition, a syndrome, which is also known as Complex Regional Pain Syndrome (CRPS). RSD/ CRPS are considered to be perhaps the most painful of all chronic pain disorders. It involves chronic, excruciating, burning pain, pathological changes in bone and skin, excessive sweating, skin discoloration, and extreme sensitivity to touch, among other symptoms.
Upwards of 1.2 million Americans are estimated to have some form of RSD/ CRPS. Approximately 50,000 new cases develop, yearly, it is estimated.
RSD is divided into two types. One, called RSD/ CRPS Type I, happens as a result of soft tissue injury, trauma, a fracture, infection, or... where there is no underlying nerve injury. -- RSD/ CRPS Type II refers to cases resulting from major nerve damage. (Type II had previously been known as "causalgia" and dates back to Civil War days.)
RSD/ CRPS affects the following: nerves, skin, muscles, blood vessels and bones, simultaneously. -- Motor, sympathetic, DNIC, and the discriminative & effectual pain system.
The most common and devastating symptom is excruciating pain which is greatly disproportionate to the injury that caused it. Top pain specialists/ and other experts in the field have stressed that RSD pain is not psychologically-based. It is the result of very real injuries sustained by the individual. These injuries alter some of the genetics. The pain and other symptoms become worse as time goes by, unless it responds to treatment.
However, there is no cure, at the present time, for RSD/ CRPS. There are however, cases of remission or adequate control of and lessening of symptoms with treatment. Researchers and doctors have come a long way in the understanding and treatment. And, there are not all that many physicians who have the experience or training to treat RSD/ CRPS.
Symptoms often spread from the originally affected area of the body to other parts of the body. Robert has the worst form, known as 'Full-Body RSD'. Please continue to read more about the care that Robert needs from Dr. Robert Schwartzman, a leading physician in RSD/CRPS care. "It's very common, and it's always missed," said Robert J. Schwartzman, a professor and chairman of the neurology department at Drexel University College of Medicine in Philadelphia.Schwartzman also sees patients at Hahnemann Univer-sity Hospital in Philadelphia.
...
Schwartzman and other medical experts who have spent years treating and researching the condition say it is difficult to diagnose.Often, it is misdiagnosed as fibromyalgia, said Schwartzman.
...
Despite the confusion over diagnosis, "a tre-mendous amount is known about this," said Schwartzman, who saw his first RSD patient, a 17-yearold woman, 30 years ago.A pioneer in RSD treatment and research, Schwartzman has treated nearly 5,000 patients and was instrumental in establishing the RSD association.The RSD clinic he set up at Jefferson Hospital was later moved to Hahnemann University Hospital.
Schwartzman estimated that three times more women than men get RSD.
Any injury affecting the nervous system can trigger RSD.Fractures, especially those involving the wrist or ankle, sprains, surgery, or any injury to soft tissue are common causes, said Schwartzman.
...
Describing RSD as "trauma, peripheral trauma," Schwartzman listed five distinct components common to the condition: pain disproportionate to its cause, swelling, autonomic dysregulation (malfunction in neural control of blood flow to tissues, excess sweating), movement disorder (limbs weaken, spasms, tremors, unable to initiate movement) and atrophy (wasting, deterioration) and dystrophy (muscles weaken).
Those with RSD describe their pain as deep, aching, cold or burning.They also experience increased skin sensitivity.
While experts do not know why injuries develop into RSD in some patients and not others, Schwartzman said research has revealed some important information about the nature of the injuries.For example, he said many of the people who develop RSD had injuries that required a cast.Also, molecules from the injury site had been carried to the spinal cord, said Schwartzman.
please click play....this song means alot -"The Climb",,by:Miley Cyrus
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