Robert's fight with RSD (Reflex Sympathtic Dystrophy)




I want to thank everyone for thier caring words and prayers. My website is for education about RSD, and for my fundraising. I will let you know that all messages that are neggative will not be posted. There is enough hate and pain in this world,I will not have it hear. If you had a treatment which did not work for you or a loved one, I am so sorry,I will pray for your comfort. I find it unfair for one to take someone else's hope of a treatment away.If my site bothers one, don't come back, we who suffer from RSD have enough trouble getting through each day with the pain, which is 24/7, it never stops, this is why my site has posts of hope and support.

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Reply Barb
11:30 PM on October 22, 2010 
Hi Robert,so sprry to hear you are having such a tough time right now.My prayers are with you and your family.My daughter age 35 has full body rsd and she to is a patient of Dr,.s.She just had alll of her test done this week in the city ,and I'm praying she gets her Ketimine clearance.Good luck to you Robert and maybe whem you are feeling better we could talk.Remember GOD is with you and everyone is praying for you.GOD BLESS!!!!Barb
Reply tmullins
9:11 PM on April 21, 2010 
Hello Robert,
I am so glad that I found your website. I hope all is going well for you & your family. My thoughts & prayers are with you & your family always.Good luck with the future & God Bless.
Kindest Regards
Tina (sufferer for 8yrs)
Reply gayle brooks
9:44 PM on April 8, 2010 
Thank you for having visited our site, Robert and inviting me to visit yours. I did not see your entry until today. I am happy for you that you are under Dr. Schwartzman's care as I write. I wish you the very best with your ongoing ketamine treatment. May it help you immensely. Dr. S is truly a lifesaver to so many, as he was our daughter, Tracy. Tracy remains healthy and active, teaching special ed full time while also completing her masters degree. So you see, there is hope. G-d bless.
Reply Diane Lennox
6:25 PM on January 2, 2010 
Hello Robert
I wish you good luck with your fundraising efforts. I am unable to donate anything as I am unable to work and also have been fighting RSD for the last six years. Could you share the names of the local doctors you have seen that were helpful and the ones that were not? I just started seeing yet another Dr in my search for relief but it is so hard to know who to go. It would be great to share information with other local RSD patients.
Thank you
Reply Diane Lennox
6:21 PM on January 2, 2010 
Dollie Pereira says...
Hi Robert, Just to let you know that you are not alone. I too suffer from this dibilitating disease. It is going on 8 yrs. for me. Look me up on facebook, we have a support group that meets twice a month if you are interested.

Hi Dollie
I am interested in more information about your support group if your in the Rhode Island area. Can you post a link to your facebook page please?
I am a six year RSD patient and know how diffcult it is to find care for this disease.
Reply Mike Humphreys
11:24 AM on October 7, 2009 
My wife just had the 5 day inpatient Ketamine Infusion with Dr. Shwartzman and came out with a zero pain scale. So there is hope out there for you. Her pain began in her left ankle and had spread up her left leg, to her right, her left arm was effected, as well as getting headaches. Her hands were "on fire" and itchy all the time to the poitn she had rubbed them raw.
As bad as her RSD was, it does not seem to compare to yours, but know that the procedure was our miracle. It gave me my wife back. I understand the depression, I watched my wife go through it. This disease took her from me for 3 years. I wish you the same sort of success that Sandy has had. It has only been a few days since her discharge, but so far so good.
Please know that there are people out here thining about you and hoping for the best.
Good luck and keep on fighting!
Mike Humphreys
Reply Laura Carberry
2:22 AM on September 29, 2009 
Hi Robert - I think I remember seeing your name on the Health Board web site under the RSD section. I too have CRPS. It was really bad at first - also from rear-end car accident that was not my fault.and it had started to spread from the knee, but I was put on Clonazepam, Lyria and Amytriptyline and did water therapy which helped. I also had an epidural during melanoma operation which I think helped reset my system as I was pain free for three months. Now the drugs control it for the most part and I use a power chair when needed. I really do feel for you. I know you have been on Fern's website and that you know that the Ketamine treatments worked for her. I am from the same area as Fern so have donated to her, but I will include you in my prayers. Her interview and the doctors interview are very touching and I think perhaps what has made the site work for her. Take care and keep fighting. Laura. Carberry.
Reply cathy Lavigne
10:23 PM on September 17, 2009 
Robert, my heart goes out to you. I've just been diagnosed from and injury that happened 1 1/2 yrs ago. I can't imagine the pain that you deal with on a daily basis. I'm only at the being. Keep up the good fight, my thoughts and prayers are with you, cathy
Reply Carolyn Clemons
5:12 PM on September 6, 2009 
Hello Robert,

I hope the Ketamine will help you with your RSD. I have had RSD since 2000. Just recently I have gotten 2 Ketamine infusions outpatient. The second one has helped me, just waiting to see what the third one will do.

Will keep you in my thoughts & prayers,
Reply karen
3:55 PM on August 29, 2009 
Robert, my thoughts and prayers are with you.... stay strong.... I know it is difficult...God and all your well-wishers will help you through this.... Give Lee a big hug from me ! See you at the Spaghetti Dinner!