Guestbook
I want to thank everyone for thier caring words and prayers. My website is for education about RSD, and for my fundraising. I will let you know that all messages that are neggative will not be posted. There is enough hate and pain in this world,I will not have it hear. If you had a treatment which did not work for you or a loved one, I am so sorry,I will pray for your comfort. I find it unfair for one to take someone else's hope of a treatment away.If my site bothers one, don't come back, we who suffer from RSD have enough trouble getting through each day with the pain, which is 24/7, it never stops, this is why my site has posts of hope and support.
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18 Comments
Reply
Mike Humphreys
11:24 AM on October 07, 2009
Robert,
My wife just had the 5 day inpatient Ketamine Infusion with Dr. Shwartzman and came out with a zero pain scale. So there is hope out there for you. Her pain began in her left ankle and had spread up her left leg, to her right, her left arm was effected, as well as getting headaches. Her hands were "on fire" and itchy all the time to the poitn she had rubbed them raw.
As bad as her RSD was, it does not seem to compare to yours, but know that the procedure was our miracle. It gave me my wife back. I understand the depression, I watched my wife go through it. This disease took her from me for 3 years. I wish you the same sort of success that Sandy has had. It has only been a few days since her discharge, but so far so good.
Please know that there are people out here thining about you and hoping for the best.
Good luck and keep on fighting!
Mike Humphreys
My wife just had the 5 day inpatient Ketamine Infusion with Dr. Shwartzman and came out with a zero pain scale. So there is hope out there for you. Her pain began in her left ankle and had spread up her left leg, to her right, her left arm was effected, as well as getting headaches. Her hands were "on fire" and itchy all the time to the poitn she had rubbed them raw.
As bad as her RSD was, it does not seem to compare to yours, but know that the procedure was our miracle. It gave me my wife back. I understand the depression, I watched my wife go through it. This disease took her from me for 3 years. I wish you the same sort of success that Sandy has had. It has only been a few days since her discharge, but so far so good.
Please know that there are people out here thining about you and hoping for the best.
Good luck and keep on fighting!
Mike Humphreys
Reply
Laura Carberry
02:22 AM on September 29, 2009
Hi Robert - I think I remember seeing your name on the Health Board web site under the RSD section. I too have CRPS. It was really bad at first - also from rear-end car accident that was not my fault.and it had started to spread from the knee, but I was put on Clonazepam, Lyria and Amytriptyline and did water therapy which helped. I also had an epidural during melanoma operation which I think helped reset my system as I was pain free for three months. Now the drugs control it for the most part and I use a power chair when needed. I really do feel for you. I know you have been on Fern's website and that you know that the Ketamine treatments worked for her. I am from the same area as Fern so have donated to her, but I will include you in my prayers. Her interview and the doctors interview are very touching and I think perhaps what has made the site work for her. Take care and keep fighting. Laura. Carberry.
Reply
cathy Lavigne
10:23 PM on September 17, 2009
Robert, my heart goes out to you. I've just been diagnosed from and injury that happened 1 1/2 yrs ago. I can't imagine the pain that you deal with on a daily basis. I'm only at the being. Keep up the good fight, my thoughts and prayers are with you, cathy
Reply
Carolyn Clemons
05:12 PM on September 06, 2009
Hello Robert,
I hope the Ketamine will help you with your RSD. I have had RSD since 2000. Just recently I have gotten 2 Ketamine infusions outpatient. The second one has helped me, just waiting to see what the third one will do.
Will keep you in my thoughts & prayers,
Carolyn
Kentucky
I hope the Ketamine will help you with your RSD. I have had RSD since 2000. Just recently I have gotten 2 Ketamine infusions outpatient. The second one has helped me, just waiting to see what the third one will do.
Will keep you in my thoughts & prayers,
Carolyn
Kentucky
Reply
karen
03:55 PM on August 29, 2009
Robert, my thoughts and prayers are with you.... stay strong.... I know it is difficult...God and all your well-wishers will help you through this.... Give Lee a big hug from me ! See you at the Spaghetti Dinner!
Reply
Claudette Lussier
11:52 AM on August 05, 2009
You have my support in whatever I can do to promote your fundraiser!
You have my prayers, as well!
You have my prayers, as well!
Reply
Cathy
08:59 AM on July 22, 2009
I was just catching up on the news in my "old" Valley Breeze newspapers, and I came across the article about you; I was moved. I made a donation; I hope it helps to some degree, I only wish it could help with your pain and suffering. I also wanted you to know that you have neighbors and friends in town who may not know you, but who support you and your beautiful family in this difficult struggle. I hope you will find the strength and courage to continue to deal with this challenge . I will keep you and your family in my thoughts and prayers.
Reply
Kitty
01:10 AM on July 18, 2009
May God bless you and keepyou strong.There is always hope if you keep thing in Gods hands.I know your pain as I to have RSD as does my 15 yr old at this time we are trying to keep her in SMP .I will pray for you and send something as soon as I am able HUGs from NJ
Reply
suzy
03:37 PM on July 16, 2009
im very sorry to hear of your illness i will be keeping you and your family in my prayers God Bless You all
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