Robert's fight with RSD (Reflex Sympathtic Dystrophy)

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Joined Apr 21 2010
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45 years old
Ayr, Queensland, Australia
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Robert's fight with RSD Reflex Sympathtic Dystrophy

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My name is Tina & I am 36 years old & I have been suffering with generalizized  RSD for 8yrs which I got afte having 3 consecutive knee surgeries. I  found it vey difficult to be diagnosed as well & was even told for ages that it was all in my head & I really did believe that I was going crazy.I have 3 beautiful children & a wonderful husband to whom I had only been married to for 2 months when I got sick. Having RS has been extremely difficult enough but here in Australia we have no real specialist on this disease so I hae had to manage with a lot of internet research & passing this research onto my doctors. Even as I write this it makes me laugh :lol: My symptems have progressed so much that I now have full gran mal seizures caused from oxygen levels dropping in my brain as well as heart problems, lung problems, liver problems & bowel problems. So basically my body is trying to shut down but I am determine to not let it. I still have a lot of life left in me. I now have a gorgeous grandson & I want to be around to to see my other children who are 13 & 14 grow up to be fine adults. I too had though God had abandoned me but I have come to realise that he is testing me too & I am destined to live with this disease & raise awareness for here in Australia, as so many think it is rare & that includes doctors! My motto is: Live, Laugh, Love like there's no tomorrow!!                                                                                                                                                                                          

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